…April 3, 2012: This morning, a mother named Sugo Devi brought her deformed infant boy to the slum school for help. This is the first time someone needing medical attention has actively come to us for assistance and marks a radical shift in our ability to provide care to this community. Parents of deformed children here have traditionally not sought help from others partially because of the negative stigma involved with having disfigured or handicapped children. Manish’s mother, for instance, turned away from me shamefully the first time I saw her holding him. Moni, even by age 5, had never been to a doctor to have her cleft lip and palate examined. Even the young “normal” children, the least likely to judge others based on appearance, originally refused to play with handicapped or mentally challenged children.
The fact that Sugo Devi showed up this morning proves that the purpose of our work is being noticed and understood far beyond our direct area of impact. The slum residents are beginning to trust us enough to overlook social barriers, which is a huge step in the right direction. I wasn’t in the slum when Sugo Devi showed up this morning, so the volunteers who were there told her to come back to the slum school at 5pm.
When class ended at the Carmel Convent School at 5pm, Heather, Natalie, Merril, Win, and I ventured into the slum. Sugo Devi was waiting for us in the shade of a slum home with her infant shielded from the judgmental eyes of others. We greeted her and introduced ourselves. Then Sugo Devi unwrapped her little boy from the excess fabric of her Sari.
The little boy, named Santosh, was shocking. No one present had ever seen such a severe cleft lip and palate.
As I gathered information for the surgeons, I was stunned to learn that Santosh was born on December 23, 2011 right here in the slum. I was likely within just a few hundred meters while she was in labor! For three months of age, Santosh is small. However, I told Sugo Devi that we will take her and Santosh to see the plastic surgeon in Delhi on Monday when we take Moni for her appointment. Sugo Devi looked grateful, wobbled her head, wrapped Santosh back up in her sari, and carried him back toward their home upstream.
Sugo Devi’s arrival is inspiring. Within the past few weeks, I have coincidentally stumbled upon three children in desperate need of medical attention. We have taken all of them to hospitals and found surgeons who are so inspired by our efforts that they volunteer their time to help us. Now, other ailing families are starting to seek our help. It was evident this afternoon that we needed to upgrade our plan of attack. Win, Mithlesh, and I immediately set out on a search and rescue style hunt through Patel Nagar for more children we could help. We decided to follow Sugo Devi’s route. With eyes peeled for deformed and handicapped children, we set out upstream.
In just over 90 minutes, we passed within 50 meters of the homes of more than 25,000 people. We stopped every 50 meters or so and asked the residents if they had seen any children who need medical attention, especially for anyone with cleft lips or palates. We found several children with uncorrectable birth defects, retardation, down syndrome, and/or polio. However, there were few children that we could drastically improve through medicine.
We searched in nooks and crannies, through the rubble of slum homes destroyed by the government, and past enough livestock to start a farm.
We were eventually led by a vigilant resident straight to Santosh and his mother. Santosh was attempting to sip milk from a bottle in his mothers arms outside of their home. Santosh cannot create suction, so his mother had unique ways to manipulate the milk into his mouth. What I saw next, however, is what made my jaw hit the floor.
With permission, I walked into Sugo Devi’s home. As I did, I learned that six people live in this tiny room about the size of my bathroom at home. Six people socialize, cook, eat, clean, and sleep in this tiny dwelling.
But even more amazing is the fact that Santosh was born in this room on December 23, 2011! I was here, walking through this slum several hundred meters away while Sugo Devi gave birth to Santosh right here on this bed. Yet again, shivers shot down my spine as I stood in the dark doorway trying to picture that scene. I imagined the cringing chaos, noises, and blood that must have filled that room on December 23.
I could hardly believe anyone would give birth in a place like this, especially with doctors and dozens of hospitals within 10 km. The Indian government would have even paid Sugo Devi to deliver her child in a hospital. However, almost all of the slum residents still opt to deliver their children at home.
We said thank you for the hospitality and carried on. Although we didn’t find any more children we could help immediately, we made our presence and mission known to the entire community.
I still wonder how many more children are out there? This is just one slum with 25,000 people and we have already found multiple overlooked children with severe and treatable conditions. There are more than 65 slums in Faridabad alone! We don’t know who’s out there, but we will never know if we don’t look.
It is my honor to introduce to you now our newest campaign, Healing the Hidden. Separate from the Squalor to Scholar Program, Healing the Hidden is attacking the lack of medical care and negative stigma about disfigured children head on. The purpose of Healing the Hidden is to provide medical treatment to overlooked slum children who might otherwise never receive the treatments they need and deserve. Your donations will help us seek, discover, and treat ailing children as well as educate their communities about healthcare options.
The new campaign is live and accessible via the blue link above. Your donations will help pay for these children’s consultations, diagnostic tests, treatments, transportation to and from hospitals, and medications. As with the Squalor to Scholar Program, every single penny of your donations to Healing the Hidden (except for small transaction fees) will go directly to children like Santosh, Manish, Moni, Prianka, and Chandni. Even Mithlesh, who lives in the slum, is working voluntarily out of his own goodwill because he knows what an incredible impact we are making.
Every dollar will make a difference. Where else can you so easily, directly, and rewardingly donate cures, smiles, and life to people who truly need your help? On behalf of the children and families receiving your care and generosity, thank you!